Struggling

I am trying to keep doing today.  I have 35 open tabs on the other window, 8 on this one.  I am not doing well, both physically and mentally.  Ron keeps trying to comfort me, but even that seems not to help.  He recommended I try to watch a movie or go to bed, but I think I would tear out of my own skin if I did not try to keep doing what I do.  

Earlier at noon I was in such pain every bone in my body seemed to be screaming at me, every muscle seemed to be spasming and causing pain.  In the morning, I had done the dishes and did not seem so uncomfortable, but an hour later the hard rain set in, and It changed everything, including my mood.  

Recently we had changes in the home.  I will be getting my original first office back.  It is a room about 10 feet long by 11 feet wide.  Ron originally took me out of that room because it was too dark for me during a time when my depression was very bad.  He rebuilt the entire front room of the house, colored and decorated it to make it the best for me.  I loved it.

When James moved back home, I was going to give up that large open bright room for him to have as his room as he liked it.  I was to move into the new family room Ron had built, but the space I was going to move to was much smaller and was totally open with no privacy.  But it was the best for everyone.

Then hurricane Ian ripped our home open.  It tore my office half open, pealing the roof half off like a can opener with a mean streak, and the neighbors roofs hit our house with the result of pulling the entire south wall of the room out.  That was when I was moved into the living room / kitchen.  It is cramped, and I have to always wear headphones which hurt my ears when anyone is home or James was sleeping in the room I had originally had as my office, which was now his bedroom.  Plus I am unable to do videos which I love and want to do.  I really want to do videos.  I know some of the people who come here are hearing impaired and I will do what I can but as I have said before typing is painful for me.

The roof and walls have been repaired in the front room.  Short story Ron and James rebuilt the wall, fixed anything wrong with the other walls due to water damage, and replaced the first roof, and ran the electric.  (we had an AMS metal roof over everything) and it was great going through two decades of hurricanes with no problem, and they are going to replace the entire roof over the home / all attached structures for $15,000.  It is worth it, first the roof had a lifetime repair for free on it, and we have had them come fix minor things over the years.  James and his friend even moved the hot tub from that room to the new family room Ron built.

James was to move into the rebuilt room as his, but he has other opportunities open to him now.  We fully support him and are very glad he is happy.  But that left the room he was in which was my first office, and the rebuilt front room which was my last office I was in before the hurricane open.  What to do?

After going back and forth, Ron was convinced to use the much larger front room as the house living room, his domain.  It took a lot of work on my part, he was all for returning me to that room.   I would move back into the smaller room again, it is 10 foot by 11 foot, with some inches on each side. I have a reason for this.  Hold on!

When Ron and I bought this house we were very much into the community, we had a lot of friends.  Twice or three times or even more a week we had people over to the house for meals or game nights.  But Ron was working 12 hour shifts and I am disabled.  It was fun and we loved it, but I decided to try to return to the work force.  A huge mistake.  As anyone who followed my first blog knows, that put me in the hospital after 4 years and cost me my left hip joint.  

Ron has since retired and things are different now, and there are still some non-maga people here.  Ron and I feel it is time to return to the community again and start to have people over.  But we have to have a home presentable for that.  

After much medication and time my pain has subsided as has the horrible hard rain with clear skies and lots of sun. Ron has described to me how he wants to make the room brighter and more me.  He is wanting to paint it and even have a new skylight put in when the roofing company does the roof.

It is now 7 or more hours since I started this post.  I am now have eaten a really good supper Ron has made, I was folding laundry but yes I offered to help.  He made a stir-fry of thin beef with veggies, and instead of rice he cubed fresh potatoes / deep-fried them.  I am stuffed, and ready to go to bed.  

I am not even sure I want to post this.  As so often on personal issue posts, so much goes by that I don’t feel or have the issues that I had at the start.  Yet it was what I was going through, and may / will go through soon again.  So I feel I should share it with the readers / followers.

And just as I wrote this I started moving around after eating at my desk, getting food for Odie and putting it on a plate, then on the floor.  My back screamed in pain.   I gasped and Ron caught it, he asked me to go lay down or go to bed.   He offered to come down and massage those muscles.  So I will proofread this, leave the other window with 35 open tabs for another day.  So much to read and post every day and now I am checking out early.   Oh well, Ron is hovering over me really wanting me to close these computers down.  So no real proofread, loves, hugs and all of that. 

Oh I had to cancel my pulmonary test, they called today the day before with my costs, it was far too much.  The woman on the phone admitted to me it was because my provider who ordered it referred it to be done at the hospital which he was in the same system as, which is much more expensive.  So now I have to decided what to do?   Hugs and good night.  Ron won’t wait, I am on a timeline.  Night.  Hugs

How I looked four years ago

me for years ago

It’s that time again.

Yes it is time to change my avatar.   I had to wait until my very sensitive skin was not chemical burned, well at least my face.  So I took these this morning before leaving for my allergy shots appointment.   Enjoy and if you have a favorite you think would make a great avatar, leave it in the comments below.   BTW I am enjoying the long hair, it would destroy the hateful adoptive parents that abused me and insisted I have extremely short hair, almost skinhead style that was against the norms of the time.  They did that to hurt and embarrass me, but now I can wear my hair anyway I want.  Yes it is a pain in the butt sometimes, a lot of times actually.  But I am not yet ready to cut it shorter.  Ron who was a hairdresser and had his own salon tells me he absolutely must trim it up to keep it healthy and I trust him.   I remember one time he cut my hair before I told him of my abuse and what was done / demanded of me, and he cut it shorter than I was wearing my hair at the time thinking it would be cute / easier for me.   I sat there and cried but what was most horrible was I couldn’t tell him why.   He never did that again.   He now always shows me how much he might cut and is very careful to not trigger me.   Dogs that love gravy he is a grand person!  Oh but I have lost 15 pounds this year.    Hugs

IMG_0404IMG_0405IMG_0406IMG_0407IMG_0408IMG_0409

Allergy update

I start my allergy shots this week, and the sooner the better.  All the troubles I have had with my heart, breathing, and with thinking came from needing my allergy shots and needing to stop the medications keeping my heart rate in check.  

Here is the list of things I am allergic too, some at life-threatening levels, which is why I have EpiPens.   Positive allergy test for Australian pine, Bermuda grass, dust mites, cat, cockroach, dog, cedar, nettle, short ragweed. Also food allergy test was positive for crab, lobster, and shrimp. Total IgE was 102 KU/L.   But that was not all.   Also there was this second set of testing.  Positive allergy test for fire ant, wasp, yellow hornet, yellow jacket, and white faced hornet. 

Interesting thing is to be allergic you have to react greater than the normal range of <0.10 and on most of the panels I was higher than that, some by a lot.    For cats, I was not that bad, just 0.14 instead of <0.10.   For dogs, I was 0.17 instead of <0.10.  Most things like mite house dust I am 8.90 and to the house dust mites I am 10.70. 

We long ago took steps to get rid of carpets and other things that trap the pollen.   I stay inside most of the time.   Ron cuts the grass.  The only plant we have is in the family room and is a big friendship bamboo randy sent me.   I have been taking allergy shots on and off since the 1990s.  Every time I get to a maintenance dose and they think I have stopped reacting, they tell me I can stop the shots.  But I gradually get sick again.  Testing confirms my allergies have come back and some stronger.  My allergist says he thinks I will just have to stay on the maintenance dose forever to have relief.   Hugs

The Morning After by Maureen McGovern

There’s got to be a morning after If we can hold on through the night We have a chance to find the sunshine Let’s keep on lookin’ for the light

Oh, can’t you see the morning after It’s waiting right outside the storm Why don’t we cross the bridge together And find a place that’s safe and warm

It’s not too late, we should be giving Only with love can we climb It’s not too late, not while we’re living Let’s put our hands out in time

There’s got to be a morning after We’re moving closer to the shore I know we’ll be there by tomorrow And we’ll escape the darkness We won’t be searchin’ any more

There’s got to be a morning after
(There’s got to be a morning after)
There’s got to be a morning after
(There’s got to be a morning after)
There’s got to be a morning after
(There’s got to be a morning after)
There’s got to be a morning after
(There’s got to be a morning after)
There’s got to be a morning after
MAUREEN MCGOVERN

Woken by my Apple Watch as I was dying in a dream

Hello everyone.   I have put off writing this all day.   First I have not felt well and second I wanted to do it without sounding overdramatic.   But Ron’s panic when he saw the EKG’s and his insistence that if it ever happens again I must wake him right away, I think a little drama is warranted.  

Last night, I had a dream unlike any dream I have had before.   Something to keep in mind is that other than my nightmares about my childhood abuse, I have the ability to gain superpowers in my dreams.   Even in dreams dealing with my adoptive father lately I have seen my self trying to stand up to him, even if I am unable to get the words out that I want to shout and instead being woken / waking up with Ron trying hard to help me and telling me I am either shouting or making guttural sounds at a large volume.  

Last night was different, I had no powers, and in my dream I knew I was about to die.  The dream took place in the front yard facing the street in a home we use to own.   One of my favorite homes.   It was very dark, no moon, and was slightly raining.  We also had rain last night.   In my dream as I twisted and danced to avoid stepping in a large puddle on our walkway to the street, (I did not have and did not seem to need my ever present canes) a black car pulled up in the street next to me.   A woman was in the car and gesturing to me, I could see this because she had the inside car dome light on.  As I approached the street she pulled up to the curb in the next door home.   

As I walked toward the car she pulled into the driveway of the home.   I was not sure what to do so I stood there in the yard.   The woman got out of the car and had a large double barrel shot gun and pointed it at me as she walked towards me.   I turned to run but tripped and fell on the ground.  

As I rolled over she was less than five feet from me with the gun pointed at me.  In my mind / dream I knew she was going to shoot me.  In the dream I remember thinking she is going to kill me and I cannot do anything to stop her.  Then I woke up with my Apple watch buzzing like crazy on my wrist.   Unlike Ron or James, I wear my watch all night.    The watch was displaying a red alert saying I was in AFIB.   I really couldn’t process what the watch said as I did not have my glasses on and I was struggling to breathe.   

After a while I calmed down and got my glasses and ran an EKG from my phone.   That also came back bad with AFIB.    I laid in bed for another 45 minutes cuddling with Ron before doing it again.   The reason I did it again was I was again having shortness of breath.  It again came back with AFIB.  My chest hurt so I got up.  

When I did so I woke Ron and that is normal.   He asked what was going on and I stupidly said my heart was in AFIB and I stupidly told him the truth, that I was having trouble breathing and my watch was saying I was in AFIB.  Ron worked 16 years in the Open Heart ICU and I don’t think I have ever seen him out of bed that quickly.  He demanded to see the EKGs, so I gave him my phone.   That started a morning of checks, repeat checks, lots of me being told to do this, don’t do that, and being watched like a toddler around open live electrical wires.    After I had my coffee and breakfast, my heart rate returned to sinus rhythm.   It has stayed that way all day.    The breathing problem is much worse at night when I am laying down in bed.   Anyway, that is what happened.   I was not scared until Ron seemed to be so upset.   I never had a dream where I was in danger and couldn’t save myself that was not related to my childhood abuse.   This time I knew she was going to shoot me and I was going to die.   Weird.   Hugs

Anyone got something like this?

For years I had a simple form we printed off when we went for groceries, and I was able to alter it for our needs.  This is the last version I have of it.   I have looked repeatedly for a new version and I can not find it.   I just tried to send it to Randy, who has been helping me with trying to start some kind of menu / shopping method to save money.  I ended up have to save it to my hard drive another 12 or 20 times until I realized how to save it as a format I can show it to others.   Yes my mind is not as clear as it used to be.  Here is the form I have after I edited it for years for Ron and me.   Does anyone know of a similar form that will help us older folk go grocery shopping.  Damn it, I can not find a way to put it into the post.   Thank you all so much.   I will try several screen clips.    Sorry.  Hugs

Grocery list screen shot 1Grocery list screen shot 2

GROCERY LIST reworked

GROCERY LIST reworked

GROCERY LIST

GROCERY LIST

By Aisle

CANNED FOODS

  • Soups___________
  • Corn ____________
  • Canned Potatoes
  • Beans___________
  • Beef Broth_______
  • Chicken Broth____
  • Chili_____________
  • Stew____________
  • Crushed Tomatoes

Tomato Juice_____

Whole Tomatoes__

SNACKS

  • Chips____________
  • Dips_____________
  • Candies_________
  • Pretzels__________
  • _________________
  • _________________
  • _________________
  • _________________
  • _________________

PERSONAL HYGIENE

  • Sensodyne ______
  • Mouthwash______
  • Bath wash_______
  • Razor Blades______
  • ________________
  • Deodorant ______
  • Shampoo________
  • Shaving cream __

PHARMACY

  • _________________
  • _________________
  • _________________
  • _________________
  • _________________

PRODUCE

  • Lettuce__________
  • Potatoes ________
  • Carrots__________
  • Broccoli_________
  • _________________
  • _________________
  • _________________
  • _________________
  • _________________

CEREALS/GRAINS

  • _________________
  • Bread___________
  • Breakfast Muffins_
  • Elbows__________
  • Spaghetti________
  • Hot dog rolls ____
  • Hamburger rolls __
  • Rolls for subs_____
  • Rolls for gravy ____
  • _________________

SPICES/CONDIMENTS

  • Chicken Bullion___
  • Peanut butter____
  • Ketchup_________
  • Mustard_________
  • Jelly_____________
  • Beef Bullion______
  • Hot Sauce_______
  • Garlic___________
  • _________________

HOUSEHOLD ITEMS

  • Lotto tickets______
  • Air fresheners_____
  • Napkins_________
  • Paper towels_____
  • Toilet paper______
  • Cleaners_________
  • Liquid hand soap_
  • Kleenex _________
  • Dishwashing soap
  • Glass Cleaner____

MEAT/SEAFOOD

  • Hamburger______
  • Steak____________
  • Ham____________
  • Deli meats_______
  • Hot Dogs
  • Fry chicken______

DAIRY

  • Margarine_______
  • Eggs____________
  • Milk_____________
  • Bacon___________
  • Sausage Patties__
  • Sausage Links____
  • Shredded Cheese
  • Hard Cheese_____
  • Sliced Cheese____

HEALTH/ETHNIC

  • Tacos___________
  • Frozen Pizzas_____
  • Burritos__________
  • TV Dinners_______
  • Sour Cream _____
  • _________________
  • _________________
  • _________________
  • _________________

BEVERAGES

  • Rum ____________
  • Wines___________
  • Beer / fuzzy drinks_
  • Coffee__________
  • Bottled Water____
  • Ice Tea__________
  • Drink Mixes_______
  • Soda____________
  • Coffee Filters_____

FROZEN FOODS

  • French fries______
  • Ice cream_______
  • Hash browns_____
  • Home fries _______
  • Onions __________
  • Green Peppers___
  • Meat Balls_______
  • Chicken_________

PET FOOD

  • Fancy Feast______
  • Treaties__________
  • Cat Toys_________
  • Kitty Litter________
  • Flea Drops_______

A health update.

Ron got really worried this early afternoon.   I was struggling to breathe as I was just sitting here watching season 2 of Picard.  I felt like my heart was trying to ram its way out of my chest and my pulse was hammering my throat / neck.  So Ron asked me to take my blood pressure / pulse.   It was 196 / 82 with a 106 pulse.   Ron asked me to shut off the show and go lay down and I felt so bad I agreed.   That was at 2 PM.

At 5 PM I got back up and Ron again had me take my blood pressure and pulse.  Now I was 169 / 78 with a pulse of 101.  I am breathing easier but still have catches and a heaviness in my chest / throat.  I wanted to start the laundry and do some more posting / news reading, but Ron wants me to sit still and watch movies / videos and not do any news watching / posting stuff that might upset me.   He got really worried this afternoon.   We even joked about my life insurance information.   But I could tell he was worried and trying to keep the conversation lighthearted.   

So no more for me today.   At least right now, the unread news tabs will sit unread, the new news will not be looked at, and comments won’t be answered.  But I do have a long list of just for fun movies and stuff on the various streaming services that might finally get some attention.    Best wishes, loves and hugs to everyone.   Scottie

The bigots have worn me down.

I am watching the Sunday news shows I can get for free.  But I am again very tired and find it hard to concentrate.   I love Star Trek and yet due to being poor rarely get to watch the newer series as they are all subscriptions services.   Sometimes I can get a season of one on Amazon Prime at a good discount, and we buy that.  

Over this week I save the open news tabs I have not gotten to yet.   This morning when I opened my browser I had 36 new stories to read and maybe post.  But I just don’t feel up to it, I am struggling to think and process information, I am very tired.  Soon they will be out of date, if not already.   

But I was able to buy the second season of Picard a while ago with Prime points.   Plus I found on YouTube a free first episode of Star Trek: Strange New Worlds.  I think I am going to watch the movies and not try to deal with the news today.   Sorry everyone, I know I am letting everyone down.   I should watch and post the videos of what is happening, the articles on the rabid right rise of Nazism, and the attacks on the LGBTQ+ in society by those people.   Maybe later I will.   Best wishes and lots of hugs.  Scottie

 

OK, what an afternoon.

Hello all my friends.   On Monday, I got some steroid shots in my back muscles to help with the pain.  But they say it takes three days for full effects.   I have to admit depending on how bad / hurting I am, the shots can help almost with in minutes of the injection.   Because of people being on vacation I did not see my normal provider so the question I have did not get answered.  But let’s move on.

This morning I got up like around 5 AM not able to sleep, that is one of the effects that these steroids have on me, I can not sleep, and I feel better than ever.   I can breathe again, I can move better, and I am feeling so much better.   But with my fragile bone situation they have to be very careful how much steroids I get.  Yesterday I worked on our laundry while Ron worked on the house and I was so full of pain and swollen muscles, Ron wanted to forbid me from any work today.  That ended up being not the case, but he is very upset while being grateful.   

Hurricane Ian took the roof off the front room of our home, it was about 12 foot by 24 foot, give or take some inches for supports or such.   The county says it is 12 by 24, so that is what we go with.  Due to our roof being hit by other roofs and debris, our roof (which is a great AMS metal roof that has never failed)  split open on a tear on the south side of an east facing room roof and peeled it back over half the room.   That was my office and my electronics were in there,  

After the storm we had to close off the room because we had a double french door there and so say six or more feet.   In the emergency Ron and James but up sheets of plywood we had over the opening to prevent any water coming in and keeping the heat out.  It was not the greatest situation, but until the inner roof was installed we had to close that part of the house off.   So recently we got the panels that we ordered right after the hurricane, so Ron and James put the inner roof up.  Ron has worked for a while to calk and fix any leaks.   

Today when as much as could be done to weatherproof the room and with Ron trying to work in that room with no air flow and temperatures between 95 and 120 I declared that the wall had to come down so Ron could work in there without the heat causing him more health problems.   At first he resisted but when I laid it all out he agreed it needed to be done.     So after trying to work in the room with the high Florida heat he came in and covered in sweat and shaking the guy with MS said he was going to lay down.  When he got up he agreed I was correct.

So as Ron was working in the supper hot room that is east facing getting all the morning sun / heat getting it ready to take down the tarps on that side and the plywood on the rest of the house side.   I worked to move everything that had been piled / set in front of that are because we did not have room for it.   Once Ron was done came the real pain issue for me.  

We had two lighter pieces of plywood across the top and on very heavy 1 inch plywood on the bottom supporting the upper ones.  Ron made sure when he took the two pieces off he made sure he took the brunt of the weight.  But I still had to help him carry them out to the family room where they are now stored.   He wanted to wait to take the biggest heaviest one off as he was really worried about my back and health.   

But I moved most of the inside stuff and Rom moved the heavy stuff and then we took down the plywood.   For the first time since Ian made landfall Sept. 28, 2022, in the Fort Myers area as a Category 4 hurricane, we had a connection to the front of our home from the inside. The ferocious 150-mph winds lasted for over 8 hours as we were in the hurricane eye wall.  Our home had with stood every other hurricane, but one woman neighbor claims she had seen a mini tornado caused by the hurricane move over our home and several others in the same east / west direction, which would have caused their roofs to be ripped off and slam into ours.  

So here is the photo I quickly took as Ron had taken the heavy stuff he wouldn’t let me handle out, and after I set up the fan.   It will be grand to get our room back.   But still we have to reapply to FEMA to pay for all the bids we finally got, but now FEMA has closed our account since it has been this long.  We have to now start a new account, get a new inspection and hope we get enough money for the 30 grand in home repairs we need after the Hurricane.   Hugs

Hugs and love for everyone.   I am going to try to eat before bed.   Scottie