A young Wisconsin man died from an asthma attack after the price of his inhaler skyrocketed nearly $500, according to a lawsuit filed by his family.
From birth, Cole Schmidtknecht suffered from chronic asthma that he treated with an Advair Diskus inhaler that cost him no more than $66.
That changed last year when OptumRx, a subsidiary of UnitedHealth Group, decided it would no longer cover the inhaler Schidtknecht used for a decade.
On January 10, 2024, Schmidtknecht, 22, went to his local OptumRx-Walgreens pharmacy in Appleton, Wisconsin, expecting to fill his usual prescription when he was advised by Walgreens that his medication was no longer covered by his insurance and would cost him $539.19 out of pocket, according to the lawsuit.
He was given no notice and, the lawsuit said, Walgreens did not offer him a generic alternative “and further told Cole that there were no cheaper alternatives or generic medications available.”
Unable to afford the inhaler, he left the store without it.
“Over the next five days, Cole repeatedly struggled to breathe, relying solely on his old ‘rescue’ (emergency) inhaler to limit his symptoms, because he did not have a preventative inhaler designed for daily use,” the lawsuit continued.
On January 15, 2024, Cole suffered a severe asthma attack and never woke up. He was pronounced dead January 21.
His parents are now suing Walgreens, its parent company Boots Alliance and Optum Rx, the pharmacy benefits manager, for negligence.
“Defendant OptumRx had a duty to not artificially inflate prescription drug prices for medications such as Advair Diskus for insured patients, including Cole Schmidtknecht, making them so unaffordable that patients could not obtain the medications their physicians prescribed,” the lawsuit said. “Walgreens Defendants failed to exercise reasonable care in that they knew, or should have known, of the unreasonable risk of harm to asthmatic patients, including Cole Schmidtknecht, that would result from their failing to provide him with Advair Diskus or a medically equivalent alternative medication at an affordable price at the point of service.”
The lawsuit comes less than two months after the assassination-style killing of United Healthcare CEO Brian Thompson, whose death renewed debate about how health insurance companies treat their customers.
Tag: Drug Access
What Is Really Going On With Trump’s Health?
Struggling to get by on programs on the chopping block
I could have written large parts of this myself. It is scary to be in our position and at the mercy of those who have so much money they will never understand our needs or it seems even care. Most of congress are multimillionaires. They see their jobs not to look out for people like me, but to gain ever more wealth and power for themselves. Which leads to the billionaire bailout bill the republicans are pushing to pass right now. Hugs
Opinion: Struggling to get by on programs on the chopping block
The author asserts cuts to programs such as Social Security Disability Insurance will make it difficult for her to afford basic necessities The program provides month payments to people who have a disability that stops or limits their ability to work. (Dreamstime/TNS)
Being a care provider in a nursing home is backbreaking work. It includes heavy lifting and spending all day on your feet, helping patients eat, dress and use the bathroom while keeping track of dozens of patients who all have different needs, medicines and preferences. It’s never easy, but during my career I held myself to the standard of providing the care I would want someone to give to one of my family members.
I was a certified nursing assistant and medication aid in nursing homes before retiring due to health problems. I loved my job. It provided me with more than a paycheck; it gave my life meaning. It felt good to be someone people could depend on, especially in times of need. I loved being the first face my patients would see in the morning and the last at night. It was physically and emotionally draining at times, but always worth it. I’ve learned that anything in life worth having is a struggle to obtain. I miss working every day.
Now, my main source of income is Social Security Disability Insurance. Without it, I wouldn’t be able to cover my rent or help take care of my daughters, grandchildren or father. My monthly disability check, which I put toward rent, laundry, bills and other necessities, goes fast. The only way I am able to cover the rest of my expenses each month is through programs such as the Supplemental Nutrition Assistance Program and the Low Income Energy Assistance Program and Medicaid.
I’m prediabetic, so I have to be mindful about what I eat. SNAP is the only way I am able to afford healthy food. Lately, the price of everything in the grocery store has gone up. I shop carefully, but some weeks I have to forego buying meat to save money. My SNAP benefits have gone down significantly in recent months, which has already made it harder for me to afford the food I need. Across Pennsylvania, over 2 million people receive SNAP benefits. That’s thousands of families in our state, just like me, who depend on this program to put food in the mouths of their children.
I’ve received Medicaid on and off for over 20 years. It has helped me pay for important surgeries including a vision surgery, cystoscopy and a hysterectomy. Medicaid helps me cover copays and deductibles and access mental health services. Losing Medicaid would mean sacrificing health care and having to pay my medical costs out of my own pocket, which I cannot afford.
Every winter, LIHEAP benefits help me keep my home warm. It keeps my heating bill manageable so that I don’t have to use the stove to generate heat. Without LIHEAP, I would need to make tough decisions about which bills to pay, whether that’s rent, electricity or gas. It would be a situation of robbing Peter to pay Paul. My monthly budget is extremely fragile and the possibility of losing LIHEAP, which provides me about $200 each winter, is enough to put my whole financial situation at risk. When I hear that politicians in Washington want to make billions of dollars worth of cuts to SNAP, Medicaid, LIHEAP and other programs, it makes me incredibly anxious. Without these programs, I wouldn’t be able to stock my fridge, go to the doctor or heat my home.
I spent decades caring for patients in need and did it with pride. No one ever expects to be disabled and suddenly have to stop working. You never know what could happen and never think it could happen to you until it does. I didn’t think I would ever need back the tax dollars I put into the system. But God had a different plan for me. These programs are so important for me and millions of Americans.
But the programs are also part of what makes America a great and a caring nation. They ensure that any American — our neighbor, our family member, or a co-worker — who gets sick can live with dignity in the richest nation on earth. It seems like Republicans in Congress have no interest in supporting everyday people. They just want to make the rich richer.
By voting in favor of cuts to Medicaid and SNAP, my Congressional representative, Rep. Ryan Mackenzie, voted to turn his back on constituents like me. With these cuts, people will suffer and end up on the streets. People like me, who are already doing everything we can to make it work, will struggle even more.
I am calling on Sens. Fetterman and McCormick to chart a different path and put an end to these proposed cuts. Lives are on the line. It’s time for our leaders to show that they care and that they are willing to stand up against billionaires. On behalf of the millions of Pennsylvanians who rely on these SNAP, Medicaid and LIHEAP, I urge you to protect these programs and our ability to provide for our families.
This is a contributed opinion column. Pamela Berman is a Bethlehem resident and former certified nursing assistant. The views expressed in this piece are those of its individual author, and should not be interpreted as reflecting the views of this publication. Do you have a perspective to share? Learn more about how we handle guest opinion submissions at themorningcall.com/opinions.
Trump Administration Is Now Providing PrEP Abroad, But Not for LGBTQ+ People
The goal is to erase gay people because super Christian Rubio agrees with the hateful that LGBTQ+ need to die or go away. They are not human people like good straight cis people are. So lets protect the straight people and hope the icky gays get the aids virus. That is their view, not mine, yours, or real Christians who follow Jesus’s command to love and care for people. Hugs
But Rubio’s waiver itself stated that “gender or DEI ideology programs” and “transgender surgeries” — e.g., any overseas programs or organizations that support trans people — should not receive aid during the “pause,” and that any programs not specifically named in the waiver “may not be resumed without express approval.”
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The President’s Emergency Plan for AIDS Relief (PEPFAR) is still barred from providing PrEP to LGBTQ+ people around the world, according to recent State Department documents, placing millions of people at elevated risk of HIV exposure.
Shortly after President Donald Trump and Secretary of State Marco Rubio ordered a 90-day freeze on foreign aid in January, Rubio issued an additional “emergency humanitarian waiver” on February 6 which appeared to allow HIV medications to be distributed abroad during that time. That waiver ostensibly meant that pre-exposure prophylaxis, or PrEP — the antiretroviral drug that prevents the transmission of HIV — would be distributed through PEPFAR. But Rubio’s waiver itself stated that “gender or DEI ideology programs” and “transgender surgeries” — e.g., any overseas programs or organizations that support trans people — should not receive aid during the “pause,” and that any programs not specifically named in the waiver “may not be resumed without express approval.”
Now, a new State Department document, dated February 6 and published online by the Joint United Nations Programme on HIV/AIDS (UNAIDS) confirms that PrEP “should be offered only to pregnant and breastfeeding women,” whereas anyone else “who may be at high risk of HIV infection or were previously initiated on a PrEP option can not be offered PEPFAR-funded PrEP” (emphases in original) during the aid freeze.
Among the “high risk” populations currently blocked from receiving PrEP through PEPFAR is LGBTQ+ people — particularly men who have sex with men (MSM) and trans people, two demographics with an increased risk of exposure to HIV. UNAIDS estimated this week that more than 3,000 new HIV infections have occurred worldwide as a result of the Trump administration’s aid freeze.
Founded in 2003 to combat the international spread of HIV, PEPFAR reported distributing antiretroviral treatments to over 20 million people worldwide in 2024, including 2.5 million new PrEP users. In 2022, PEPFAR spent 8.9% of its budget, or approximately $20.1 million, on services for MSM and trans people, according to an analysis by the health policy research organization KFF. A further $28 million went to provide HIV prevention and treatment services for sex workers.
Trump and Rubio’s aid freeze has also already resulted in PEPFAR-assisted programs shutting their doors. The Kenyan “Fahari ya Jamii” initiative, a five-year HIV prevention project founded in 2022, shut down more than 150 clinics and placed more than 700 workers on unpaid leave following the freeze last month, as the Washington Blade reported February 5.
The freeze is part of Trump’s larger war against the United States Agency for International Development, or USAID, the federal agency which distributes civilian foreign aid and partially funds PEPFAR. Amid the administration’s purge of “woke” terminology — including the terms “gender” and “LGBTQ” — from government websites, the USAID site was still entirely offline at time of writing. The agency was also the subject of a House committee hearing on February 5, during which Rep. Nancy Mace repeatedly used a transphobic slur to denigrate U.S. support for LGBTQ+ programs abroad.
Global health organizations have condemned the Trump aid freeze particularly as it relates to HIV prevention, warning of dire consequences already taking place. The international watchdog group Human Rights Watch wrote this week that even a temporary pause on PEPFAR programs “could be devastating” for countless people around the world. The AIDS Vaccine Advocacy Coalition (AVAC) and Journalism Development Network, Inc. filed a joint lawsuit against Trump, Rubio, and Office of Management and Budget director Russell Vought on February 10, alleging the administration’s aid freeze is illegal and unconstitutional. On February 11, a group of USAID contractors and non-governmental organizations filed another such lawsuit, alleging that the freeze had already caused “irreparable damage.” The administration is already fighting a third lawsuit brought by a group of USAID employees last week, which led a federal judge to issue an injunction against the furloughing of USAID workers on February 7.
“[W]ith this new guidance, the Trump Administration is choosing politics over science, discrimination over compassion, and ultimately, death over life,” AVAC representatives wrote in a statement last week. “The February 6th guidance […] is not only a dangerous deviation from sound public health policy — it is a death sentence for thousands of people at risk of HIV globally,” the organization wrote, adding, “This decision appears to be less about public health and more about an ideological agenda that seeks to police morality rather than protect lives.”
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Samantha Riedel is a writer and editor whose work on transgender culture and politics has previously appeared in VICE, Bitch Magazine, and The Establishment. She lives in Massachusetts, where she is presently at work on her first manuscript. … Read more————————————————————————————————————————–The civil disobedience draws attention to a federal program credited with saving 25 million lives in over 50 countries.
Some Bluesky posts. I recommend reading the links to the anti-trans stories.
Texas bill would reclassify abortion drugs as controlled substances
https://www.texastribune.org/2024/11/25/abortion-texas-pills-controlled-substance/
Credit: REUTERS/Evelyn HocksteinA Louisiana law that reclassified abortion-inducing drugs as controlled substances has made it more difficult for doctors to treat a wide range of gynecological conditions, doctors say.
Now, a similar proposal has been filed in Texas.
Texas Rep. Pat Curry, a freshman Republican from Waco, said the intent of House Bill 1339 is to make it harder for people, especially teenagers, to order mifepristone and misoprostol online to terminate their pregnancies. Doctors in Louisiana say the measure has done little to strengthen the state’s near-total abortion ban, but has increased fear and confusion among doctors, pharmacists and patients.
“There’s no sense in it,” said Dr. Nicole Freehill, an OB/GYN in New Orleans. “Even though we kept trying to tell them how often [these medications] are used for other things and how safe they are, it didn’t matter. It’s just a backdoor way of restricting abortion more.”
These medications are often used to empty the uterus after a patient has a miscarriage, and are commonly prescribed ahead of inserting an intrauterine device. Misoprostol is also often the best treatment for obstetric hemorrhages, a potentially life-threatening condition in which women can bleed to death in minutes. Since the Louisiana law went into effect, hospitals have taken the medication off their obstetrics carts and put them in locked, password-protected central storage.
One hospital has been running drills to practice getting the medications to patients in time, and reported, on average, a two minute delay from before the law went into effect, the Louisiana Illuminator reported.
“In obstetrics and gynecology, minutes or even seconds can be the difference between life and death,” Dr. Stella Dantas, president of the American College of Obstetrics and Gynecologists, said in a statement after the Louisiana law passed. “Forcing a clinician to jump through administrative hurdles in order to access a safe, effective medicine is not medically justified and is, quite simply, dangerous.”
Curry said these restrictions won’t stop doctors from prescribing these medications when necessary, but will stop the “wide misuse” of the drugs to circumvent the state’s near-total abortion ban.
Curry said he consulted with the author of the Louisiana law, as well as OB/GYNs in Texas to draft the bill. He said the doctors who have criticized the legislation are raising these concerns as a “smokescreen” because they don’t want more restrictions.
“I understand that. We don’t need or want all kinds of regulations,” he said. “Especially as Republicans, regulations should not be high on our list, but in this case it’s a necessary evil given the situation.”
Texas roots for a Louisiana law
In March 2022, Mason Herring, a Houston attorney, spiked his wife’s water with misoprostol to force her to have an abortion. Catherine Herring was pregnant with the couple’s third child, a daughter who was born 10 weeks premature. She survived, but has significant developmental delays, according to the Associated Press.
Mason Herring was charged with felony assault to induce abortion, and pled guilty to injury to a child and assault to a pregnant person. He was sentenced to 180 days in jail and 10 years of probation.
Catherine Herring’s experience led her brother, Louisiana state Rep. Thomas Pressly, to file a bill that would have made it a crime to coerce someone into having an abortion.
But at the last minute, the bill was amended to also reclassify abortion-inducing drugs as controlled substances, according to the Louisiana Illuminator, leaving hospitals and doctors scrambling to comply with the new restrictions. The state health department advised storing the medication in a locked area on the crash cart, which at least some hospitals have said is not feasible.
“We had to rework how we utilize misoprostol across our hospital systems,” Freehill said. “Labor and delivery, pharmacy, nursing staff, you name it, they were all involved with figuring out how to stay within the law but still use these medications that we need access to.”
It’s rare for a state to decide on its own to classify a drug as a controlled substance. Most commonly, the federal government decides which medications should be “scheduled,” based on their medical usefulness and the potential for abuse. Schedule I drugs, like heroin, have no medical use and are often used recreationally; Schedule IV and V are medications that are useful but have a potential for abuse, like Xanax or Valium.
There are enhanced penalties for having a controlled substance without a prescription, and increased restrictions on how doctors can dispense them. Pharmacists must report any prescriptions for controlled substances to the state Prescription Monitoring Program, and doctors are required to check the database before prescribing certain controlled substances. Law enforcement also has access to that database.
Prescription monitoring has been key to combating the opioid epidemic by identifying doctors who were overprescribing and patients who were getting prescriptions from multiple providers. But with so much political attention on mifepristone and misoprostol as abortion-inducing drugs, doctors are worried about scrutiny for frequently prescribing these common medications.
“We had to fix a problem that wasn’t broken,” said Freehill. “There’s no reason for it to be Schedule IV. It’s not something people abuse. It’s not something people can become addicted to. It’s extremely safe.”
A group of Louisiana health care providers recently filed a lawsuit arguing the law discriminates against people who need mifepristone and misoprostol for other conditions, and challenging whether the last minute amendments to the bill were proper. Louisiana Attorney General Liz Murrill has said the new restrictions are clear and should not delay care. Those who “have attempted to sow confusion and doubt,” she said in a statement, “profit from misinformation.”
When the law first went into effect, Anna Legreid Dopp, senior director of government relations for the American Society of Health-System Pharmacists, told CNN that the group expected other states to consider similar measures.
“Almost immediately, our members raised concern that if this is being done in one state, it can easily be a template for other states to use it,” Dopp said.
Restrictions on medication
Curry, who recently won a special election to fill the seat long held by Republican Rep. Doc Anderson, said Pressly and Herring have offered to come testify in support of his bill this session. He anticipates it getting wide support from his fellow lawmakers.
Since the overturn of Roe v. Wade, conservative groups have turned their attention to restricting access to abortion-inducing medications. A group of anti-abortion doctors filed a lawsuit to revoke the Food and Drug Administration’s approval of mifepristone, which the U.S. Supreme Court ultimately rejected.
Curry said there are reasons to keep these medications on the market beyond abortion, but they need tighter restrictions.
“You can lie about your age, you can lie about your name, you can lie about your address, there’s no verification whatsoever,” he said, referring to online prescribers. “And it gets shipped to a 15-year-old girl, a 13-year-old girl.”
It is already a crime to mail abortion-inducing medications in Texas, and many of the online pharmacies operate in a legal gray area outside U.S jurisdiction. Others are working in states that have “shield laws” that protect doctors’ ability to prescribe and mail pills into states that have banned abortion. None of these interstate and international legal questions have been tested in court with regards to abortion.
Freehill said she would encourage Texas doctors to learn from what has happened in Louisiana as they prepare to advocate against this bill this session.
“There’s a lot of education that needs to be done surrounding what this means and what these drugs are really used for,” she said. “I don’t know that we would have been able to sway people, even with more time, but we can at least educate on why this is completely inappropriate and really governmental overreach.”
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Scottie's Playtime 