I should have gone to bed long before now. It is 8:04 pm, and I was doing so well most of the day. Today was the first day all week my mind was clear. I did 2 hours of dishes and took extra medications to handle it. I had to take my medications early to be able to do that.
Ron and I talked about what to have for supper after he had me help him rehang the door in my office, which is temporary until Ron buy’s the new door for the Playtime Pink Palace. Ron had gone for a nap while I was OK, but when he got up, I was fading. So he rushed out to get the stuff needed to make a bake Ziti and a lasagna made with the sauce I made yesterday. Again I made a great red tomato sauce. This a greatly compressed timeline.
When Ron got home from buying the stuff needed, I was not interested in eating, I really just wanted to go to bed. But Ron talked me into playing Halo on my Xbox while he cooked. I soon realized I was failing at that. Normally I do great with Halo, but tonight I was killed as soon as I started. I went back to the computer, but couldn’t function at that either.
Ron has made supper but as good as it is I just can not enjoy eating. I will eat what he gave me, first because I took insulin already and second … well we share a bed. Everything else tonight is gone. Loves, hugs, best wishes. Scottie
Scottie's Playtime 
You guys rest well. I’m sorry this happens, and I hope it stabilizes soon.
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Hi Ali. I do also. It happens after I get my steroid shots and if I have a lot of doctors visits in a week. My steroid shots mess up my sleep, blood sugar, and hunger badly. Plus it lowers my immune system which is already depressed by my other conditions. So as soon as I go out again, I get sick. Or my allergies kick into high gear. I wouldn’t do them, but they really do help a lot, and not just with my muscles. I breathe a lot better after I get them. Unfortunately for me, I have to have them every month for the next few months.
Right now today after getting up at 4:20 after being awake all night, I am serious all night. I tossed and turned and drifted off a few times, Ron came to bed, and I spent the night hugging him. But from like 2:20 am I was awake. I have cycled between being overly hot, so hot I couldn’t stand it, to freezing cold. I got up at 4:20 with my body pain screaming at me.
After the normal morning stuff, I went back to bed and got 3 hours of fitful sleep. Then started my normal day. I understand I am lucky in that I have a roof over my head and a wonderful husband also enough food even though we are very low on funds. But I wonder if people understand the personal situation I am in, with so much pain and medical issues?
But it doesn’t really matter does it. Just knowing people out there like what I post, like what I share about my life, and are really wonderful caring people is wonderful and grand. People like you keep me going. Hugs and loves. Scottie
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Well, we out here appreciate your work, and you, too, Scottie. Thanks! I hope this evens out.
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Sleep well, my friend, and I hope you feel much better tomorrow. Love ‘n hugs
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Hi Jill. Thank you. I really don’t know how you do it, day after day keeping up the schedule you do. I get so tired and worn out, and you are still going strong. I explained my day to Ali above in reply to her. I did actually have a good night of cuddling Ron, even if I did not sleep. But I am really worried about my inability to focus and concentrate on blogs and stuff I read. I must find a way to avoid the fog and lethargic that overcomes me. I don’t know if that comes from the brain blood stuff I went through, or if it is something else. It really scares me. What if Ron needs me and I can not think? Anyway thank you. Hugs and loves. Scottie
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It caught up with me this weekend and I had to take some “me time”. We are only human, my friend. We have to sometimes step back, give ourselves a bit of time, for our own physical and mental well-being. Take care, dear friend. Hugs
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