Today 4 13 2025

Scotties Playtime says:

April 20, 2025 at 5:33 pm

Hi Barry. Thank you. Did you see this post I made? https://scottiesplaytime.com/2025/04/15/autism-is-not-a-disease-is-not-a-sickness-and-needs-no-cure/ In the comments, I credit you for opening my eyes about the way autism is talked about, the way autistic people are talked about, and the fact that autistic people are normal not requiring fixing. I remember the question you asked me. How would you feel if gay people were referred to as people with gay. Yes that hit home. You made the situation so clear to me. I remember growing up hearing people around me say gay people were sick, broken, needing to be cured. Now we needed to make it clear to the rest of the ones like RFK who think it needs to be fixed or prevented. Thank you for educating me. Best wishes always.

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1. Barry says:
  
  April 21, 2025 at 5:03 am
  
  Kia ora Scottie. I had seen the original post but I’m a bit behind in following up with liking and commenting. I had not seen the subsequent comments, so thank you for your kind words. I’m currently going through one of my irregular “migraine fog” episodes where I experience little or no pain, but have to contend constantly with aura (visual, auditory and olfactory) and cognitive issues. For someone who is unfamiliar with my condition they may see my symptoms as dementia (or overdosed on alcohol or drugs). However, unlike dementia, the symptoms disappear as the migraine subsides. I do understand your concerns about Ron, for although my symptoms are reversible, family have the same concerns about me when I have migraine fog as you have with Ron. And because I understand their fears, I have made changes to my lifestyle even though I find them stifling at times. For example I wear Medic Alert bracelet at all times that I cannot remove by myself. My phone has location tracing permanently enabled and several family members can pinpoint my location at any time. It also notifies them every time I leave home. I don’t travel any distance ( no more than 30 minutes from home) without someone who can act as caregiver should the need arise. I avoid and am constantly on the lookout for migraine triggers (both known and suspected). While I’m prepared to accept the inconvenience of being picked up by the police, medics or well meaning members of the public and being subjected to the horrors of the emergency department as the price of my independence, I know this places unnecessary stress and worry on my family, so I accept, for their sake I must give up some of my independence.
  
  I know that Ron’s situation is not the same as it is progressive, but I do understand the difficulties you both are facing.
  
  Kia kaha 💪💖👥🤝🌈✨
  
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