I am an older gay guy in a long-term wonderful relationship. My spouse and I are in our 36th year together. I love politics and news. I enjoy civil discussions and have no taboo subjects. My pronouns are he / him / his and my email is Scottiestoybox@gmail.com
On Monday March 23 I had an epidural in my back. On Tuesday I had to have my blood work done for some upcoming doctor’s appointments. Ron and I went over the results and they don’t look good. They look worse on the computer screen than what came out in print because the print did not have all the colors and marks. But I looked up some of the results. One said it could be an indicator of anemia, which I have had in the past bad enough to put me in the hospital. The other suggestion from looking up the fact that all this dealt with my red and white blood cells was leukemia or kidney disease, and more likely autoimmune issues. I have all the symptoms of lupus, and my immune system has long been compromised. So that is a possiblity. My PSA is elevated and my TSH keeps dipping low. That is my thyroid which means is it going hyperactive. My first endocrinologist said that the thyroid reacts to things happening in the body so it could be dropping due to my other results. Medicare kicked back three tests because of changed codes / incorrct codes / or too early. The tests were PSA, A1C, and lipid panel. The lab wanted over $400 for the tests. I declined to pay for it. Here are the printed labs from the website and then scanned so I could include them. I deleted / covered the sensitive identifying information. Got to go get shots from the allergy clinic, they had to put me back on weekly for 5 weeks. Oh and I am salt wasting. No change it is actually the same from the last test and up from the low of 117. My kidneys don’t get the signal from my brain to stop taking salt out of my blood. At 115 you can start to have seizures. I am one of the few people told to eat as much salt as I can. Hugs
One thing that was not mentioned is the reason Cuba has such poverty is all the US sanctions over 60 years. When Obama lifted sanctions things got much better for Cuba. The Cuban government is not the problem and when there was less sanctions the people were happy with the government. We are the bad guys in this. We, the US government is refusing to let any other country send any supplies because we demand they have a capitalist oligarchy system of government mimicking the US one. How is that working out for us? Cuba has free universal medical. Free education. Do we? But that is the old guy mentality that every country should / must do and be as the US and profit must be king. All this reparation for what was nationalized? Why? US corporations and wealthy land owners were raping the land and hogging the profit and goods. They had a better system if left alone. But again the old red scare from the USSR days. Remember “better off dead than red”? The US must push democracy and oligarchy. Venezuela was the same thing, we did not like that they had a government for the people, a socialist / communist one and they nationalized the oil systems because the profits were not going to the Venezuelan people but to western corporations. Other countries have a right to their own resources. But remember tRump demanding that Ukraine give up half of its mineral rights to the US / tRump family? Hugs
Venezuelans deported by US detail fresh claims of torture and abuse at El Salvador mega-prison
Petition seeks accountability from Salvadorian authorities over human rights violations at notorious Cecot facility
OK so we had the appointment with his new heart doctor. I liked him he smiled a lot and was a genuinely happy man even though it was clear he had a bent spine and so was hunched over. When Ron told him I was his spouse the doctor totally seemed OK. I was wearing my white pride hat as usual. He remembered Ron from the ICUs and asked if I was medical as well. I replied no Ron was the doctor in our family which got a smile and chuckle from him as Ron tried to protest that which made the doctor smile more. He said he would talk to both of us on my level, even if it was basic for Ron because he wanted me included. When I had a question he would answer it and totally include me in all the discussion. Ron has one blockage they think is 80% and and at least two that are 70% and one that is just starting.
The plan is to do a heart catheterization. They will go in through the wrist and prep the groin in case. They feed a sleeve into the wrist then thread a wire all the way to the arteries around the heart. They then open the blockage, put a stent surrounded by a balloon where the blockage was. If a part of the blockage breaks they can introduce medication right then to stop it from doing any damage.
Wow Ron and I had a huge argument. I dislike it and he totally blames it on me. But when the surgical center called to schedule him for the heart catheterization, and instead of taking the first appointment he asked for one three weeks later. I interrupted and said no you want it sooner if possible.
He kept the appointment for nearly a month and a week out. When he got off the phone I asked him to explain that. Wellhe replied I have Diane flying in on 3-28, and we are scheduled to fly out april 2nd. I was angry and argued with him that this same thing killed his sister’s husband and if he asked her she would agree he needs the early appointment. Which was when he fucked around and after we had a huge fight where I told him that his sister could get her friends and her husband’s friends to do what she had wanted Ron to do. She wants help with the moving company and then driving from Texas to here. When he calmed down from our argument he called her and she agreed with me. So then he was so angry that we had another exchange. I was trying to stay calm but he was so upset he was almost out of control, throwing things. I asked him to think of us. If he suffered a heart attack on the road or moving around furniture at her house he could easily die. I couldn’t keep or repair this house. I would not be able to keep Tupac and no one else around us will let him live with them or pay the 75 dollars for his thyroid medication every 6 to 7 weeks. He is incontinent and he leaves poops dropping out of his butt because he was hit by a golf cart and it damaged his spine and nerves. So he would have to be set on the rainbow bridge. I told him I would end up having to rent a room at Randy’s as he has offered it. Ron was furious and said I was thinking only of myself and I replied he was thinking only of his sister.
But by then it was too late to get in touch with the scheduling department. The heart place is huge and they have their own surgical center there. They only do six procedures on an operating day. So he hopes they will call him today. I worry that he will not be able to get a quicker date so I don’t know what will happen. Hugs
Yesterday was so stressful and a wash. We had to go get our blood drawn. Medicare tossed out three tests one on my prostate, my A1C, and a lipid. All the tests together were over $400, and I refused to pay for them. Then we went out for breakfast. Ron was fading but we hoped food would boost him. It did. Next we went to our local Publix and got a few things for supper. I would make a marinara sauce and Ron would take some chicken breasts, coat them in breading and cook them with Pepper Jack and swiss cheeses. Then after shopping we went to the carwash next door for a $36 carwash. Then we came home about 1 and I was just able to lock in the free full The Majority Report. Then he wanted to nap but once in bed we couldn’t find his phone so he could listen to music. I searched everywhere and then tried to ping it. The ping wouldn’t work which was odd. It would start to then shut off. Which meant someone had shut the phone off each time. I had Ron use my phone to call the diner and yes it was there. So at 1:30 pm I drove him back to the restaurant to get his phone. He was lucky this time. I did not see him put it down, he claims it must have fallen out of his pocket, I lets say I am skeptical. Remember I still had laundry to do, dishes to wash, and Ron wanted me to make a sauce. Because of everything I never started making the sauce until 4:30 which is late because it has no time to simmer. I was limping badly and couldn’t trust my right leg to stand. This morning I got us up at 5:15 am and got him in the shower. He has the important heart doctor appointment. I then took mine. While in the shower I realized as a new patient he would have a bunch of forms and history to fill out. But he couldn’t get to them because you have to be in their system already in the patient portal to even get to the new patient forms. So I rushed to print all the forms and 6 page questionnaire for him. He had just enough time to finish them and now in three minutes we have to go. Sorry for the rushed explanation and for not getting to any comments. I fell into bed right after eating in a lot of pain. My labs are horrible claiming stress and immune failure and possible kidney failure. My body cannot handle stress and I am under a lot of it. Hugs
Hi Everyone. Sorry for no posts except from my phone and later from my tablet which I have to carry a backup power supply and cord with me now to doctors appointments as my old pad has a battery life of less than 10 minutes. A new Ipad is not a priority for our money right now even the cheapest one. Ron needs heart surgery, Ron needs cataract surgery, I need both new glasses and cataract surgery, and the van still has an oil leak. Plus Kamyk has basicly given up and slipped into depression. He had an apartment open up that he needed first/ last / and security for which came to $900 a month. It was government-subsidized housing. But because he is in long term care now the nursing home took all his SSI, leaving him with no money. Plus he no longer gets physcial therapy so he is slowly losing the ability to walk again. His sister started a go fund me but he forbade her to tell me about it. He felt we had all done too much for him and did not want me or you people to think he was trying to milk us or be greedy.
In a way I am glad he did not tell me until it was too late because I worry that as he can’t walk well, doesn’t drive, and did not know how long it will take to get his SSI back, that he wouldn’t be able to care for himself and so would be homeless in two months. The nursing home he is in is really nice compared to the last one which was abusing him emotionally, physically, and even sexually because the nurses decided he needed Jesus in his life and he rejected that being forced on him. So they were going to abuse him until he relented and came to their Jesus. This one gives him his medications on time, changes his ostomy bag or helps him do it, and they have been nice / kind to him. I understand his frustrations having to share a room with another person and basicly having no privacy but… the US government / wealthy don’t care about people in a land where profit is king.
I got up at 4:20 to feed the cat who when he thinks he needs food howls to get one of us up. I decided to stay up and watch the recorded news that I did not get to watch yesterday. I was not well at all yesterday, highly stressed which has been the situation for a while. My doctors were clear and Ron reminded me that my body breaks down under stress, and I am to be under as little stress as possible. That is not possible and has not been for a while. When I woke yesterday it was already much later than normal for me. Ron said he could tell I was having a bad night, I was highly agitated. I had gotten up at 2 am with a huge contracture, a “cramp” in the large side muscle in the upper part of the leg. I managed to get out of bed but couldn’t straighten out my leg. I spent 30 minutes moving around the bed holding on to the dresser and the end of the bed, leaning over to put weight on the leg, then removing it. Eventally I got it to touch the floor and hold some weight so I limped to my office and got a cane, then went to the bathroom which was a critical need by then. Ron never woke up and was upset I did not wake him. Not much he could do that I did not know to do myself.
When I got up with Ron at 7 I still couldn’t move or use the leg which was being electrified from the knee down, I couldn’t bend the leg due to the muscle still hurting from the cramp. I was swinging the leg forward and walking “peg legged” with a cane. Ron realized something was wrong and had me take my blood pressure and pulse. My blood pressure was extremely high. My pulse was also far too high. So high he asked me to take another dose of my blood pressure and heart rate medications. Ron had me sitting and checking it every ten minutes. It was not coming down and the first news show I started watching made it worse. So as I as them recorded I went back to bed until noon.
The reason for so much stress is Ron. He had his new medication Saturday that opens the arteries so he was better Sunday, but all day friday and Saturday I had to watch him and deal with him. He was exstrememly forgetful, unable to work his computer, he would sit in his recliner and fall asleep even during a conversation. He has bad sleep apnea and so he has to have his CPAP machine anytime he goes to sleep. But even in the bed he was forgetting to put it on until reminded. I offered to move it out to his chair but he would promise not to fall asleep as he just wanted to watch a few things on TV, 2 minutes later he was asleep. I would make him go to bed and I stay there until he had his CPAP on. I don’t dare let him drive like this so I am doing all the driving and shopping now. I am doing the dishes so he doesn’t exsert himself and the last time he washed the dishes he put everything away in the worng drawers not even realizing he was doing it. So yesterday afternoon while he slept I did the dishes. He cooked a porkloin last night so I have a bunch of dishes to do when I get home. I did pick everything up and rinsed everything off / out so it should be easier than it could have been.
I have a doctor’s appointment this morning and I have to go with Ron as you can see to his new heart surgeon on Wednesday morning, which I have to look up and see where he is. I am tired people. I went to bed at 5 yesterday but kept getting up to check on Ron as he was in his recliner and I wanted to make sure he was not sleeping. Care of the cat has totally fallen to me now. I asked him if he could clean the cat litter box before he came to bed. He assured me he would so I went to bed. And he did not do it as he forgot. I did it when I woke up. Randy is sick after just having surgery, his parents are both sick / ill. Ron is teetering with the same thing that killed his brother-in-law. And I am worried and scared.
When I get the dishes done today I will try to get to the wonderful comments and reply to somethings Ali posted which I appreciate. Ali has really stepped up and is posting more to give everyone something on the blog to read and engage in. I can’t say how much I am grateful for that. Got to go. Hugs
ICE officers set to deploy to airports as delays mount, border czar Homan confirms
Border czar Tom Homan says ICE agents will help the Transportation Security Administration “move those lines” while also enforcing immigration law.
Scottie's Playtime 