The Majority report team talk about this kid who mouthed off to ICE guys and gets beaten, kidnaped, beaten again, then dumped over a mile way in a Walmart parking lot. This is not police behavior these are gang thugs terrorizing people. They are no different than any other criminal gang. Hugs
The Naked Pastor’s art has been posted here more than once. I receive newsletters since he got off Substack, (I think that’s how it happened? Or someone on Substack linked him.) Anyway, today’s newsletter is really nice to post with today’s news. I don’t have a link for the newsletter, so I’ll copy-paste it below. This is the link to his About page on his site. His site where all the art is!💖
Now here comes the letter. Many of the links go to his art pages, or authors’s Amazon pages, and he does sell his art to sustain his work (his work is not on Amazon, to be clear.) It doesn’t hurt to windowshop, but it’s perfectly fine to not click the links (except his About page!) I wanted to say something just in case going to a page might put someone off that this is all about advertising; it’s not. Again, here’s the newsletter! (And Bless The Badass is a fine piece of art!)
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I’ve been thinking a lot lately about how deep some of our cultural assumptions run, especially the ones that have shaped how women are treated. Some of these ideas are so old, so embedded, we don’t even notice them. But they are still here, quietly shaping how we build our systems, our theology, our science, and even our car seats. Let me show you what I mean. Cartoon: Bless The Badass! Dad Joke: ‘Jod’ Quote: Violence against women Original: All I Need is a Sliver of Light Merch of the Week: Question Everything T
Cartoon of the Week Bless the Badass! I bless the badass that you are! I am so inspired by so many women to be a badass myself! (BTW… several people have commissioned me to draw “Badass” for a loved one to make the person look like them.)
Dad Joke What if God just came down one day and said, “It’s pronounced ‘Jod’! and then left?
Quote From an expert criminologist on violence against women: “Statistically, we know now that once the hands are on the neck, the very next step is homicide… They don’t go backwards!” – Kate Manne, Down Girl: The Logic of Misogyny. This next one is a fascinating book because it exposes just how thoroughly embedded is the patriarchy in our thoughts, attitudes, and treatment of women. “… if a woman became pregnant following her rape, it meant she had ultimately enjoyed herself.” – Eleanor Janega, The Once and Future Sex: Going Medieval on Women’s Roles in Society.
Women Suffer The above quote about a woman getting pregnant from her rape meant that she enjoyed it is based on the “two seed theory”. This theory, which lasted more than 2,000 years, taught that the man and the woman each contributed a seed when they both orgasmed, that these two seeds mixed, and that the dominant one determined the formation of the child. The only way a woman could get pregnant then was if she orgasmed. How condemning! I believe the residue of that bad theology and science is still deeply embedded in the patriarchal psyche. Janega’s research also reveals that whenever women began to succeed, men would attempt to put an end to it. For example, it was believed that embroidery was a woman’s task. But when women began to build successful businesses by embroidering clothing for the wealthy… that is developing a fashion industry… the men took over the businesses, and put the women to work as labourers. There are so many stories like that. Interestingly, though, all of this patriarchal maneuvering is rooted in philosophy, theology, and even science. It wasn’t just the ancient philosophers who proposed and espoused the two-seed theory, but theologians like Tertullian and Augustine, and scientists like Hippocrates. The assumption was that man was the gold standard of what it meant to be a person, and women were a spin-off of that ideal and therefore second-rate. This, of course, is rooted in the creation story of Adam and Eve. But once this assumption of supremacy is embedded in our thinking, then it determines every other thought that follows. I have a personal story. Lisa and I finally got a new car… something we’ve needed for a long time. It’s a Toyota Rav4. We need a reliable All Wheel Drive because Lisa often drives to work as a nurse before the plows clear the roads of snow. I want her to be safe and secure. We love it. Or, I should say, I love it, and Lisa isn’t so sure anymore. Why? Because she can’t get the driver’s seat comfortable. I was talking to a neighbour about her work car, also a Rav4, and she said she wouldn’t get one. Why? Because she can’t get the driver’s seat comfortable. I’ve heard of a few other women with the same complaint. I googled it, and it is a thing. This reminded me of another book I read by Caroline Criado Perez, Invisible Women: Data Bias in a World Designed For Men. As the title suggests, the book is filled with data illustrating how the world is designed by men for men. It’s not necessarily malicious. But when a car seat used to be designed, manufactured, and tested by men, women inevitably suffered. (Is this still going on?) This included seatbelts, especially for pregnant women. As well as little things like lower temperature settings in offices where men warmly wear suits or at least sleeves, while women are expected to bare their arms, upper chests, and legs. Like I said, it’s not necessarily malicious, but women suffer as a result. Just like science believed that women could only get pregnant if they orgasmed. It wasn’t necessarily malicious, but women suffered for centuries. This is why I think it is so important to question everything, including our most cherished assumptions, and to consider the consequences these assumptions have on those around us.
So my friend, if we want to build a more just, compassionate world, we have to be willing to ask hard questions about where our ideas come from and who they are leaving out. It is not just about our personal beliefs. It is about recognizing the ripple effects those beliefs have on others. Sometimes the harm was not intentional. But it is harmful nonetheless. I say, let’s ask more questions!!!
ICE white supremacist gang thugs getting even more agressive attacking people. They no longer care about skin color. The gang has reverted to gang tactics of intimidation. They think might makes them right. The ones with the guns are in charge is what they have been taught. And the administration is OK with this as it helps their cause to have a frightened public unwilling to stand up to them. They are covering their faces because they understand they are breaking the laws and that if a police officer tried this they would be in prison. They know that Stephen Miller will not always be there to protect them. And tRump can not pardon people found guilty of state crimes. In this clip a woman rushes into another woman’s home. The police dispatch incorrectly tells her she must hand the woman over and she almost does, but then gains courage as ICE thugs draw closer on her property. Her neighbors come out and give her strength and support. Hugs
The government take over of thoughts and what material people can read is happening with the assistance of the tech community. The limiting what people can see or read started with the idea of restricting any media that positively presented the LGBTQ+ community so to protect the children they claimed. See how quickly it has progressed in less than a year to simply the government telling / demanding the right to tell people what they can read or view so that the government is never disfavored or contradicted. Totally as China and Russia work. How do you like living in such a society. Remember the people who had these books on their device had paid for them and Amazon did not return their money, they just reached in and deleted the material they did not want you to read. Once the precedent is set it will be used by any new government who wish to control the population and how they feel about the society they live in. Hugs
A commuter using an Amazon Kindle while riding the subway in New York.Credit…Lucas Jackson/Reuters
In George Orwell’s “1984,” government censors erase all traces of news articles embarrassing to Big Brother by sending them down an incineration chute called the “memory hole.”
On Friday, it was “1984” and another Orwell book, “Animal Farm,” that were dropped down the memory hole by Amazon.com.
In a move that angered customers and generated waves of online pique, Amazon remotely deleted some digital editions of the books from the Kindle devices of readers who had bought them.
An Amazon spokesman, Drew Herdener, said in an e-mail message that the books were added to the Kindle store by a company that did not have rights to them, using a self-service function. “When we were notified of this by the rights holder, we removed the illegal copies from our systems and from customers’ devices, and refunded customers,” he said.
Amazon effectively acknowledged that the deletions were a bad idea. “We are changing our systems so that in the future we will not remove books from customers’ devices in these circumstances,” Mr. Herdener said.
Customers whose books were deleted indicated that MobileReference, a digital publisher, had sold them. An e-mail message to SoundTells, the company that owns MobileReference, was not immediately returned.
Digital books bought for the Kindle are sent to it over a wireless network. Amazon can also use that network to synchronize electronic books between devices and apparently to make them vanish.
An authorized digital edition of “1984” from its American publisher, Houghton Mifflin Harcourt, was still available on the Kindle store Friday night, but there was no such version of “Animal Farm.”
People who bought the rescinded editions of the books reacted with indignation, while acknowledging the literary ironies involved. “Of all the books to recall,” said Charles Slater, an executive with a sheet-music retailer in Philadelphia, who bought the digital edition of “1984” for 99 cents last month. “I never imagined that Amazon actually had the right, the authority or even the ability to delete something that I had already purchased.”
Antoine Bruguier, an engineer in Silicon Valley, said he had noticed that his digital copy of “1984” appeared to be a scan of a paper edition of the book. “If this Kindle breaks, I won’t buy a new one, that’s for sure,” he said.
Amazon appears to have deleted other purchased e-books from Kindles recently. Customers commenting on Web forums reported the disappearance of digital editions of the Harry Potter books and the novels of Ayn Rand over similar issues.
Amazon’s published terms of service agreement for the Kindle does not appear to give the company the right to delete purchases after they have been made. It says Amazon grants customers the right to keep a “permanent copy of the applicable digital content.”
Retailers of physical goods cannot, of course, force their way into a customer’s home to take back a purchase, no matter how bootlegged it turns out to be. Yet Amazon appears to maintain a unique tether to the digital content it sells for the Kindle.
“It illustrates how few rights you have when you buy an e-book from Amazon,” said Bruce Schneier, chief security technology officer for British Telecom and an expert on computer security and commerce. “As a Kindle owner, I’m frustrated. I can’t lend people books and I can’t sell books that I’ve already read, and now it turns out that I can’t even count on still having my books tomorrow.”
Justin Gawronski, a 17-year-old from the Detroit area, was reading “1984” on his Kindle for a summer assignment and lost all his notes and annotations when the file vanished. “They didn’t just take a book back, they stole my work,” he said.
On the Internet, of course, there is no such thing as a memory hole. While the copyright on “1984” will not expire until 2044 in the United States, it has already expired in other countries, including Canada, Australia and Russia. Web sites in those countries offer digital copies of the book free to all comers.
Again we see the institutionalized casual racism in the US. This was the basis of the CRT higher education classes were about. All the media latched on to and went into great detail over a white woman’s shooting by ICE but only report vaguely and sporadically on the shooting of the black / brown people shot by ICE. But when you read the report below think on how racist ICE gang thugs are, the fact that they have broken other laws and assaulted other people with impunity as they are defended by the power of the US government. One last thing to think on. The ICE thug was clearly angry and he had his gun out, ready, and pointed in front of him allowing him to shoot the man without raising his gun. The reported statements from the government never mention him drawing his gun nor raising it, just that he fired his weapon defensively. If he felt threatened why openly approach the man with the long gun? Why no call for back up? Depending on the time was the ICE thug wakened up by the noise of gun fire? Hugs
Friends and family of the 43-year-old man who was fatally shot by a Department of Homeland Security agent in Northridge on New Year’s Eve gathered on Sunday to demand accountability and hold a candlelight vigil for their lost loved one.
They identified the victim as Keith Porter, who they say was a well-known and well-liked person in the community.
“If I could say anything to the ICE agent, it’s that you’re a murderer,” said Jasané Tyler, Porter’s cousin. “You stole my cousin from me. You stole their father from them. You stole Francine’s son from her.”
Porter’s loved ones are demanding justice after the father of two died on New Year’s Eve. He was shot by an off-duty U.S. Immigration and Customs agent at the apartments where they both lived.
Keith Porter, the 43-year-old man fatally shot by a DHS agent in Northridge on New Year’s Eve. Porter Family
His family contends that he was shooting a gun in the air to mark the new year. A statement from DHS on the incident contends that it was an “active shooter situation.”
“On December 31st, an off-duty ICE Officer bravely responded to an active shooter situation at his apartment complex,” the statement said. “In order to protect his life and that of others, he was forced to defensively use his weapon and exchanged gunfire with the shooter.”
Another statement from DHS Assistant Secretary Tricia McLaughlin provided further details. She said that the agent was “in his apartment, when he heard what he suspected were multiple gunshots. The suspected gunfire grew progressively louder, indicating to the officer that whoever was firing a gun was approaching his apartment. The officer took his ICE-authorized firearm and left his apartment to investigate. He moved to the ground level and went outside, where he believed the suspected gunfire was coming from.”
McLaughlin’s statement says that the officer rounded the corner of the building, where he encountered Porter, who they said was allegedly armed with a long rifle.
“The ICE officer identified himself as law enforcement. In response, the individual pointed his weapon at the ICE officer. The officer ordered the subject to put the weapon down, McLaughlin said. “When the subject refused to comply, the officer fired defensively with his service weapon at the subject to disarm him. The subject fired at least three rounds at the officer.”
Porter’s friends and family don’t buy it, especially with members of law enforcement in their own family.
“Every one of them says this is not standard, this is not protocol,” Tyler said.
Black Lives Matter leaders, who hosted the Sunday night vigil, are outraged by what happened.
“Were this anyone else, there would’ve been an arrest,” said Dr. Melina Abdullah, with BLM. “You don’t get to just murder people because you don’t like what they’re doing or how they’re celebrating.”
Los Angeles Police Department officers tell CBS LA that their investigation into the shooting is still ongoing. They also told the LA Times on Sunday that they haven’t yet spoken with the ICE agent due to protocol on how deadly force investigations are conducted when they involve federal law enforcement officers.
A photo of Renee Macklin Good, who was shot and killed by an ICE officer in Minneapolis earlier in the day on Wednesday, is taped to a light post near the site where she was killed at 34th Street and Portland Avenue.
Ben Hovland | MPR News
Renee Macklin Good’s wife, Becca Good, said that the 37-year-old poet and mother of three was made of sunshine.
“She literally sparkled,” Becca Good said in a statement. “I mean, she didn’t wear glitter but I swear she had sparkles coming out of her pores. All the time.”
But behind that light was a well of deep values that Macklin Good lived by, including a conviction that every person — regardless of “where you come from or what you look like” — deserves compassion and kindness.
“Renee was a Christian who knew that all religions teach the same essential truth: we are here to love each other, care for each other, and keep each other safe and whole,” Good said.
Those were the values that brought the Goods to stop during an ICE operation in south Minneapolis on Jan. 7. Though they were relatively new in town, Becca Good said they wanted to support their neighbors.
“We had whistles,” she said. “They had guns.”
An offering at the memorial for Renee Good in Minneapolis on Friday.
Ben Hovland | MPR News
Bystander videos show a federal agent grabbing the handle of Good’s car and demanding she open the door. As she begins to pull away, footage shows another officer — since identified as Jonathan Ross — pointing his gun at her and firing through the windshield of the car.
A video taken by Ross that began circulating Friday also shows Macklin Good saying to the agent, “That’s fine dude. I’m not mad at you.”
The Trump administration has cast Macklin Good as a “domestic terrorist” who tried to run over federal agents, though that is not supported by eyewitness accounts or footage from the scene.
Her presence made ‘folks feel good’
Macklin Good was born in Colorado Springs as Renee Nicole Ganger. She graduated from Old Dominion University in Virginia in her early 30s, with a degree in English. In 2020, she won a prize from the Academy of American Poets for a poem called “On Learning to Dissect Fetal Pigs.”
MPR newscaster and poet Emily Bright reads Renee Macklin Good’s poem “On Learning to Dissect Fetal Pigs.”
While at Old Dominion University, she took a fiction workshop with associate professor Kent Wascom. That class with Macklin Good was the first class he taught there.
He said he could still clearly remember how her warmth and positivity shaped the experience for everyone as they shared their own writing with the class.
“She was incredibly warm with her peers, generous with their work, and was just a bright and engaging presence that made folks feel good,” he said. “When the temptation to offer a biting critique might have fallen on another student, she was there with something kind to say, something positive to say about the work or something insightful that might be helpful.”
He said at the time that she was taking his class, she was pregnant with her son. It was the early days of the pandemic too, and despite all she was balancing, she stood out in how she continued to uplift others, even remotely.
News crews film near the memorial for Renee Good on Portland Avenue in Minneapolis on Friday.
Ben Hovland | MPR News
Along with her son, who is now six years old, she was also a mother to two other older children. Her wife described them as “extraordinary children” and said the youngest had already lost his father.
The Minnesota Star Tribune quoted Macklin Good’s mother Donna Ganger, who described her as “extremely compassionate.”
“She’s taken care of people all her life. She was loving, forgiving and affectionate,” she said.
Macklin Good and Becca Good had moved recently to Minneapolis, in search of a new home.
When Macklin Good, her wife and their six-year-old son road-tripped to Minnesota for the chance to make a better life, the couple held hands the entire car ride, Becca Good said. Their son made drawings on the windows as the miles stretched on toward Minneapolis.
When they arrived, they found a vibrant and welcoming community and a “strong shared sense here in Minneapolis that we were looking out for each other.” Becca Good said she finally found peace and safe harbor.
But “that has been taken from me forever.”
A woman prays the rosary during a vigil for Renee Good, a woman who was shot and killed by an ICE officer in Minneapolis earlier in the day on Wednesday.
Ben Hovland | MPR News
Each night since Macklin Good was killed, thousands of people have shown up to protest ICE and hold candles in support for Macklin Good and her family, locally and in other cities. Online, a GoFundMe that aimed to raise $50,000 in support of the family, has surpassed $1.5 million and has since closed.
The support has come in from out of state and out of the country.
“I’m sorry that you lost your life so senselessly simply because you were brave enough to stand up for your neighbors,” one donation read. “Please rest in peace knowing that we will take it from here. Tyranny will not stand, Good will prevail.”
“Renee, your death weighs heavily on my heart. You stood up for your neighbors and for immigrants like me, a Somali who knows how much that protection matters. I am heartbroken for your children, who must now live without you,” another read.
“I’m truly sorry for your loss, we all know the truth and I hope you get justice,” read another.
Becca Good expressed gratitude for the wave of support and called for honoring Macklin Good by living her values and coming together “to build a world where we all come home safe to the people we love.”
“The kindness of strangers is the most fitting tribute because if you ever encountered my wife, Renee Nicole Macklin Good, you know that above all else, she was kind,” Becca Good said.
“In fact, kindness radiated out of her.”
Here’s the full statement from Becca Good:
First, I want to extend my gratitude to all the people who have reached out from across the country and around the world to support our family.
This kindness of strangers is the most fitting tribute because if you ever encountered my wife, Renee Nicole Macklin Good, you know that above all else, she was kind. In fact, kindness radiated out of her.
Renee sparkled. She literally sparkled. I mean, she didn’t wear glitter but I swear she had sparkles coming out of her pores. All the time. You might think it was just my love talking but her family said the same thing. Renee was made of sunshine.
Renee lived by an overarching belief: there is kindness in the world and we need to do everything we can to find it where it resides and nurture it where it needs to grow. Renee was a Christian who knew that all religions teach the same essential truth: we are here to love each other, care for each other, and keep each other safe and whole.
Like people have done across place and time, we moved to make a better life for ourselves. We chose Minnesota to make our home. Our whole extended road trip here, we held hands in the car while our son drew all over the windows to pass the time and the miles.
What we found when we got here was a vibrant and welcoming community, we made friends and spread joy. And while any place we were together was home, there was a strong shared sense here in Minneapolis that we were looking out for each other. Here, I had finally found peace and safe harbor. That has been taken from me forever.
We were raising our son to believe that no matter where you come from or what you look like, all of us deserve compassion and kindness. Renee lived this belief every day. She is pure love. She is pure joy. She is pure sunshine.
On Wednesday, January 7th, we stopped to support our neighbors. We had whistles. They had guns.
Renee leaves behind three extraordinary children; the youngest is just six years old and already lost his father. I am now left to raise our son and to continue teaching him, as Renee believed, that there are people building a better world for him. That the people who did this had fear and anger in their hearts, and we need to show them a better way.
We thank you for the privacy you are granting our family as we grieve. We thank you for ensuring that Renee’s legacy is one of kindness and love. We honor her memory by living her values: rejecting hate and choosing compassion, turning away from fear and pursuing peace, refusing division and knowing we must come together to build a world where we all come home safe to the people we love.
As the flu and covid are on the rise again vaccines are on the decline due to the tRump admin claiming that the best science we have is wrong based on feelings and in the case of the people like JFK Jr it is greed. People don’t realize he makes his money suing drug manufacturers that produce vaccines. Every time he thinks he has some wacked out idea he sues and nothing they can show him will matter to him, all he wants is money and to stop vaccines for other people, as his families kids are protected. Think on it, he is vaccinated, their family has the money to get the vaccines without medical insurance, all he is doing is making it harder and more costly for your kids to get them because you need the medical insurance to help pay for it. Hugs
Under Robert F. Kennedy Jr.’s guidance, the CDC no longer recommends routine vaccination to protect against meningococcal disease.
Jan. 11, 2026, 7:00 AM EST
By Kaitlin Sullivan
Deaths from a rare and dangerous bacterial infection could rise if fewer teens are vaccinated, doctors warn.
After the Centers for Disease Control and Prevention recommended that all adolescents get vaccinated against meningococcal disease in 2005, cases of the potentially deadly illness plummeted in the United States by 90%.
However, cases have sharply risen since 2021, likely due to a combination of mutating bacteria and declining rates of vaccination overall, especially among teens getting a booster dose for bacterial meningitis, doctors suggest.
Dr. Luis Ostrosky, an infectious disease doctor at UT Health in Houston, is concerned that as cases of bacterial meningitis climb in the United States, the CDC’s recent overhaul of the childhood vaccine schedule could lead to more deaths.
Under Health Secretary Robert F. Kennedy Jr.’s guidance, the CDC is no longer recommending a meningitis vaccine for all adolescents. The vaccine and booster protect against the most common types of the infection in the U.S., serogroups A, C, Y, W.
“We see quite a few cases of meningitis per year,” Ostrosky said.
Under the new guidance, the vaccines will be recommended for “high-risk groups,” although parents can still ask doctors to vaccinate their children through a process called “shared clinical decision making.”
Teenagers and college-age adults, who often spend a lot of time in groups or communal living spaces such as dorms, and people with HIV are considered at highest risk for the infection, caused by a group of bacteria called Neisseria meningitidis.
Vaccination is important not because the disease is common — around 3,000 people are diagnosed with bacterial meningitis in the U.S. each year — but because the infection is both extremely serious and fast-moving.
Bacterial meningitis can progress quickly, causing the brain to swell and limbs to develop gangrene and sepsis, and can kill within 24 hours.
Symptoms such as headache, stiff neck, vomiting and fever come on suddenly, and may be mistaken for other minor illnesses. It can be treated with antibiotics, but even with rapid diagnosis, about 15% of patients die.
Fast-acting and life-threatening
Why some people are susceptible isn’t well understood. The infection develops when usually harmless bacteria travel through the respiratory tract and infiltrate the membranes surrounding the brain and spinal cord, causing severe inflammation. These bacteria, which commonly live in the back of the throat, can spread from person to person through close contact.
It can lead to a life-threatening infection in someone whose immune system is compromised — sometimes by a simple cold or flu virus — or who doesn’t have immunity to those bacteria. Viruses and fungi can also cause meningitis, but bacterial meningitis is the most serious.
Among patients who survive, as many as 20% have lifelong disability or complications, including amputated limbs, hearing impairment and neurological problems.
“You can die from a brain hernia, or from sepsis,” Messacar said. “And if you survive a brain hernia, you will most likely have severe complications.”
In 2024, the CDC issued an alert about a rise in cases of a type of invasive meningococcal disease. More than 500 cases were reported, the highest since 2013. Most of the infections were due to a specific strain of the Y serogroup of bacteria, which is included in the previously recommended vaccine. The cases were more common in adults ages 30 to 60, in Black people and in people with HIV.
“It’s even more important now that we get meningococcal vaccines out to people given that we are seeing a spike in this Y strain,” Messacar said.
The Food and Drug Administration has approved three types of meningitis vaccines. In 2005, the CDC began recommending that 11- and 12-year-olds get vaccinated against the most common meningococcal serotypes, A, C, Y and W. Because of waning immunity, the CDC in 2011 added a booster recommendation for 16-year-olds to protect them through young adulthood. A vaccine for meningitis B and a combined shot are available for children or babies who are considered at high risk.
In a statement Monday, Kennedy said that the CDC’s new childhood vaccine schedule was “aligning the U.S. childhood vaccine schedule with international consensus.”
Dr. Peter Chin-Hong, an infectious disease doctor at the UCSF School of Medicine in San Francisco, said the new approach to meningitis vaccination in the U.S., which is based on Denmark’s, is flawed.
“You can’t just look at another country’s vaccine approach and photocopy it. You really have to look at what is happening in your own country,” Chin-Hong said. Given the safety of meningitis vaccines, “it makes sense to vaccinate.”
Alicia Stillman, who serves on a World Health Organization task force for eliminating meningitis, worries that by moving the vaccine into shared decision making, the CDC is creating hurdles for parents who want to protect their children.
Stillman’s daughter, Emily, died from meningitis B in 2013. Emily had been vaccinated against meningitis A, C, W and Y, but the FDA didn’t approve a vaccine for meningitis B until 2014.
Emily Stillman, pictured with her mother, Alicia, was 19 when she died from meningitis B. Courtesy Alicia Stillman
Because many types of bacteria can cause bacterial meningitis, different vaccines are needed. The meningitis B vaccine hasn’t been recommended for all children but is available for people at high risk through the shared decision making process.
“I have watched medical professionals not bring [meningitis B vaccination] up,” said Stillman, who is the co-executive director of the American Society for Meningitis Prevention. “I have watched parents who are maybe a little less educated and not know how to ask about it, or they go to a public clinic instead of a private clinic where they have less time with a provider.”
She believes that could happen more broadly with the changed guidance.
What the research says
A CDC statement said the changes to the recommendation reflect the need for more data on certain vaccines, “including placebo-controlled randomized trials and long-term observational studies to better characterize vaccine benefits, risks, and outcomes.”
While there haven’t been placebo-controlled trials for meningitis vaccines — which would test how well a vaccine works either by deliberately infecting people with bacteria or by seeing how well they fare if they are infected in the real world — there have been many randomized clinical trials and other studies that use decades of data collected from both vaccinated and unvaccinated individuals in the real world.
Chin-Hong said placebo-controlled trials aren’t realistic or ethical for every drug, especially for life-threatening and rare diseases.
“A well-designed observational study, especially using decades of experience, can be just as informative as a randomized controlled trial,” Chin-Hong said.
A 2020 CDC report analyzed 20 clinical trials on meningococcal disease vaccines, including data from the Vaccine Adverse Event Reporting System (VAERS) and the Vaccine Safety Datalink (VS). The most common reported side effects were “mild to moderate,” and included swelling, fever and headache.
In 2005, Katie Thompson, now 39, was infected with an antibiotic-resistant strain of bacterial meningitis when she was a college freshman, the same month the FDA approved the first MenACWY vaccine.
“I don’t know how to describe it besides it’s pure hell,” she said.
After five weeks in the hospital and nearly dying, she went home, but not without lifelong complications. Thompson, who lives outside of Charleston, South Carolina, still struggles with migraines and vestibular disorders that cause vertigo and nausea. The infection was hard on her organs and she uses a bladder stimulator that helps regulate both her bladder and nerves in the base of her spine.
“It’s just not a disease that you want to take a risk on,” she said. “It’s not one that you want to gamble with your child’s life.”
Two vaccines that remain universally recommended by the CDC — the Haemophilus influenzae type b, or Hib, vaccine and the pneumococcal vaccine — protect against some causes of bacterial meningitis. However, these vaccines don’t protect against meningitis A, C, W, Y or B.
Kaitlin Sullivan
Kaitlin Sullivan is a contributor for NBCNews.com who has worked with NBC News Investigations. She reports on health, science and the environment and is a graduate of the Craig Newmark Graduate School of Journalism at City University of New York.
Scottie's Playtime 